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Face Forward 2026:
The Ramsay Hunt Syndrome

Patient Support Summit

Rare Disease Support
Support for Ramsay Hunt

About the
2026 Face Forward Patient Support Summit

On September 19, the 2026 Face Forward Patient Support Summit will bring together patients, caregivers, clinicians and advocates for an inspiring day of connection, education, and empowerment.


This event will feature:

 

  • Expert medical presentations on the latest RHS research and treatment advances

  • Interactive workshops and wellness sessions for patients and caregivers

  • Networking and advocacy opportunities to strengthen our growing community

​​

Event Agenda

Time
Event
8:00 am

Check-in and Breakfast

8:45 am

Welcome Address: Dr. Nancy Fisher, President of RHSF

9:00 am

What is RHS?

Clinical experts share their knowledge of RHS – its causes, symptoms, 

& what we know about recovery and possible prevention

10:00 am

Hands-on workshop with leading facial nerve therapists

11:00 am

Keynote Address: Faye Linda Wachs, author of 
Metamorphosis:

Who We Become After Facial Paralysis

11:30 am

Lunch

12:30 pm

Mental Health and RHS

1:00 pm

Ask the Experts: Rapid Fire Treatment - Roundtable 

Clinicians and therapists answer audience question about RHS

2:00 pm

Keynote Speaker

Mara Robinson, PT, MS: Mindfulness and RHS 

2:30 pm

Closing Remarks: A Patient Perspective from Howard Stall

3:00 pm

Reception

Register

Face Forward 2026: RHSF Patient Support Summit
September 19, 2026 

Early Bird Rate: $135 (until June 15th)
Regular Rate: $160

Location:

Friday Center, 100 Friday Center Dr

Chapel Hill, NC 27517

Date and time: Sat, Sep 19, 2026 8:00 AM - 4:00 PM

Organizer: Ramsay Hunt Syndrome Foundation

2026 Face Forward Summit 

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Patient Support Meeting RHSF

Accommodations

Need accommodations and/or coming from out of town?

 

The closest airport is Raleigh Durham International.

We have a reserved a limited number of rooms at the Courtyard by Marriott Chapel Hill a very short walking distance from the Friday Center.

 179.00 USD per night

Last Day to Book: Wednesday, August 19, 2026

To make a reservation by phone: 919-883-0700

Or

Book your group rate for Ramsay Hunt Syndrome Foundation Patient Support Summit here

Marriott RHSF Face Forward

Sponsorship Opportunities

Your sponsorship will make this critical event possible — helping to unite voices, inspire advocacy, and bring visibility to a condition that too often is misdiagnosed.

Why Partner with Us

By sponsoring this event, your company will:
Demonstrate leadership in health advocacy and corporate social responsibility
Gain brand visibility among patients, clinicians, and national health organizations
Be recognized as a changemaker supporting research, recovery, and resilience
Connect directly with an engaged and motivated community
Your support helps bring education, awareness, and healing to people whose lives have been profoundly affected by Ramsay Hunt syndrome.

Sponsors Supporting Our Mission

Thank You

We extend our heartfelt gratitude to our sponsors for their generous support.

Your contributions are vital for education, advocacy and raising awareness for

Ramsay Hunt syndrome.

MUSC Facial Nerve Center
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Frequently asked questions

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