We’re here to uplift and support every person living with Ramsay Hunt syndrome (RHS) through compassionate care, meaningful education, and strong advocacy.
Every story matters. Every patient matters. And every donation brings us one step closer to greater awareness, better resources, and the kind of care and connection that every individual and family deserves.
Together, we can transform understanding into action—and hope into healing.
What is Ramsay Hunt Syndrome?
Understanding RHS
Ramsay Hunt syndrome (RHS) is one of the leading causes of facial paralysis, but for the people who experience it, it’s so much more than a medical condition. Symptoms often appear suddenly—sometimes within just a day or two—and can include intense ear pain, dizziness, a blistering rash, changes in hearing, and facial paralysis. Many patients are first told they have Bell’s palsy, only to learn later that RHS is usually more severe and can make recovery far more challenging.
Behind every diagnosis is a real person facing fear, uncertainty, and a life turned upside down.
That’s why the Ramsay Hunt Syndrome Foundation (RHSF) was created in 2024—to ensure that no patient has to walk this journey alone. Our mission is to improve care, expand understanding, and support every individual and family affected by RHS.
The RHSF Mission Statement
Who We Are
The Ramsay Hunt Syndrome Foundation exists for one reason: to stand beside every person living with Ramsay Hunt syndrome (RHS). Our mission is to uplift and care for patients by offering real support, clear education, and strong advocacy when it’s needed most.
We are committed to pushing research forward, improving early diagnosis, and making sure patients and families have the resources they need to navigate this life-changing condition. More than anything, we want to create a community filled with hope, understanding, and empowerment—where no one feels alone, dismissed, or unheard.
Every patient deserves the right information, compassionate care, and a team that believes in their recovery. That’s what we’re here to provide.