Resources
Stay informed and connected with our growing library of Ramsay Hunt syndrome resources. Explore dedicated sections for Patients and Providers, and sign up for our free monthly newsletter to receive the latest research updates, treatment insights, and community news. You’ll also find additional helpful links below for further information and support.
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Click on a section below to learn more.
Links to Other Resources
- Facial Palsy UK - https://www.facialpalsy.org.uk/causesanddiagnoses/ramsay-hunt-syndrome/ has more helpful information on RHS and recovery approaches-
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Living Rare Study: LivingRareStudy.org (http://livingrarestudy.org/?fbclid=IwZXh0bgNhZW0CMTAAAR3WFRaCtcE3yumj4sFF6rD_s5nSd5fAXXWkPeVczsa9mDKb9YJRORqecIk_aem_yeXOq8Cd7d10R3O4zu1ZvQ)
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- Questions about the Shingrix vaccine: https://us.gsk.com/en-us/media/press-releases/new-long-term-data-show-shingrix-continues-to-provide-high-protection-against-shingles/
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- Optimizing the medical management of idiopathic facial paralysis: Michael J. Reilly, M.D., Georgetown University, American Academy of Facial Plastic Reconstructive Surgery (AAFPRS) Annual Meeting 2021. https://www.youtube.com/watch?v=HFhjy6QOEKg
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- Fix My Face: Expert Advice for Maximizing Recovery from Bell’s Palsy, Ramsay Hunt Syndrome, and Other Causes of Facial Nerve Paralysis, by the Foundation for Facial Recovery, available where books are sold.
- The Hunt for My Smile: Stories of people who lost their smile to facial paralysis, and their journey to find it again, by Amy Sameck, available where books are sold.
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- Lightkeepers: The Power of Becoming Safe Harbour in the Mental Health Crisis by Mike Shoreman- We are excited to share with you the Facial Paralysis Information Bot.
Click here to start the bot: https://m.me/110403753934092.